We received the letter from Basingstoke yesterday morning. My surgery date has been booked for the 14th August and I'm to be admitted two days before on the 12th for the various tests and preparation prior to the op.
I rang and spoke to Sue Alves (specialist pseudomyxoma nurse) and we had a chat about the results of the last blood tests and the CT scan done on the 19th June. The good news is that the tumour markers remain normal. The CT scan also showed "marginal growth" from the one done in January and no signs of disease anywhere else. All this is very good news as there are no nasty surprises at this point and it only remains to see what the surgeons find when they actually open me up again. In some ways I think its good to have a 2 year MOT to see whats going on inside since the MOAS.
We talked a little again about the operation itself and Sue basically echoed the comments from our last meeting. The operation itself will be around six hours or so with the first couple of hours likely to be dealing with the adhesions and scar tissue from the last operations. Then the excision of the PMP and subsequent re plumbing .I will also have another dose of HIPEC during the op which takes around 90mins which may also be followed up with repeat doses over the following days.
Its hoped that I wont have to have chest drains this time around as there is no need to operate on the upper abdomen. The chance of having a stoma is also less although cant be ruled out and I will be marked up by the stoma nurse prior to surgery (a big black circle on my tummy with a marker pen-x marks the spot!).
In terms of recovery I am being told to expect to take the same amount of time as the MOAS both in hospital and at home. The first time around I spent around a week in ICU and then out onto C2 ward for a total stay of 13 days. Lets hope its as quick this time around. I was off work for around 4 months.
The family have all coped well with the news. It was a foregone conclusion really and is no surprise.We were already mentally preparing ourselves for it and as there are no nasty surprises in the results we have received are now focussing on getting it done. We have done it once so we can do it again is the attitude. Hopefully this will be the last time.....
So once again we climb aboard the PMP runaway train and the countdown begins........
Friday, 29 June 2012
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