" I am sure that all fellow PMP sufferers who attended found the whole experience as equally uplifting as we did-it was clear that we are certainly not alone in dealing with this uncommon prognosis, and really encouraging to meet fellow sufferers and professionals to discuss and review our experiences.
I believe that the way ahead will offer more encouragement amongst those affected from a closer
degree of contact with their surgeons and clinical teams,and to be able to participate personally was really helpful in this respect, by attending the Meeting.
We found the break-out sessions that we attended, Sessions 2 and 4 particularly helpful.
From the discussions within our Breakout Session 4, chaired by Tom Cecil, it was very encouraging indeed to learn that there are plans to create a dedicated website/portal which will offer all of those involved, the patients and the clinical teams, a new opportunity to inter react, and thereby facilitate the exchange of information."
The patient forum run by Basingstoke and North Hampshire Hospital is now a date not to be missed if you or a member of your family suffer with Pseudomyxoma Peritonei. Here the most up to date news on diagnosis,treatment and care can be heard from the leading experts on this subject. I strongly advise attending, its also a great opportunity to meet fellow sufferers of a disease that affect just 2-3 people per million per year.
On another positive note I have just found out this week that the company I work for will be doing a dress-down day to raise money for Basingstoke and North Hampshire Hospitals Pseudomyxoma and Colorectal Cancer Trust Fund in May. Any money raised by the staff will be matched pound for pound by Nisbets Plc. It's fantastic news and I am chuffed to bits that the business has chosen to help the hospital that has done so much for me and many other Pseudomyxoma and bowel cancer sufferers. Without them I wouldn't be writing this today...